Blog
Measured Risk
Lisa shares an article she read that had her thinking about the measured risk the PI community has learned to take, but how others seem to struggle with it.
Work In Progress
Nancy joins the Immune Competence blog with a look at what it has been like for her working from home and navigating the ever-looming return to the office while trying to determine what will be safe for her and preparing to advocate for herself as needed.
2021 Was Hard
Colin shares how hard 2021 was for him and his family, but how he found compassion, acceptance, and gratitude in living with a primary immunodeficiency during a global pandemic.
When Nothing Feels the Same
Lisa shares her feelings going into a strange end of the holiday season and the past times she has created boundaries to protect herself during the holidays.
Primary Immunodeficiency and COVID-19 Vaccines
Joanna is a member of the primary immunodeficiency community and guest blogger for Immune Competence. Joanna shares some resources and conversations with others that she found comforting when trying to learn more about COVID-19 and the vaccines.
On Losing Laura
A rare disease life is often filled with a difficult loss. For Lisa and Nancy, there will never be anyone like Laura. Learn more about why these friendships are worth having, even through loss.
2020 - The Year of Vulnerability
Colin talks about what 2020 has meant to him so far and how he is trying to be more vulnerable to help himself do better and be better.
Powered by Plasma
Colin shares a new national campaign from Immune Competence called Powered by Plasma. We are all linked together through plasma and we need more plasma donors.
Let's Talk Treatments
Lisa breaks down some of the treatment options for how to do your Ig therapy as well as options as to where you can do your Ig therapy.
One Drug: Many Uses
Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.
20 Years Later - Thank You Plasma Donors
Colin reflects on hitting his 20 year anniversary since starting Ig therapy and talks about the importance of bringing awareness to plasma donation.
Infusion Cancelled - Shortage
Lisa takes a look at the problems behind the current infusion problems people are facing. She examines how supply works, where current problems could be, and what questions to ask if you hear the words “Your next infusion is cancelled.”
Stop Playing the Game
Lisa provides some practical advice for how to stop playing the game and being happy for other people. She talks about how her tips have helped her garner more empathy and support from those people around her.
Sharing is Caring
Colin shares his insight in how he uses everyday experiences to share his story and help raise awareness for the PI community.
My Word in 2019 - HEALING
Lisa checks-in with an update on why 2018 got hectic, and why her word for 2019 is HEALING!