Blog
Finding Balance
Colin shares some of the highlights from his year in 2018, how he found mindfulness through meditation, what he hopes to accomplish in 2019, and a personal thank you to the thousands of people who continue to read the blog.
Clinical Trials
Ever wonder what happens in a clinical trial or how they work? Lisa shares her experience in being a part of three different clinical trials.
When YOU Are the Product
With all the information in the news on your data be used to target you, Lisa takes a look at what data you may be giving up in the most unsuspecting ways.
Be Your Own Advocate
Colin shares some thoughts about being your own advocate from a presentation he saw recently. Colin also challenges you to come up with your own advocacy goal for April - Primary Immunodeficiency Awareness Month!
Let's Talk Insurance
Lisa gives a refresher on insurance lingo and puts it all together to help you better understand different insurance scenarios that you may face when seeking care.
Let's Talk Lingo
Colin shares some of the important differences in terms and acronyms that may come up when you are talking to other people about your Primary Immunodeficiency, CVID, Ig Therapy, and plasma.
Patient 101 - A quick guide to improve healthcare interactions
Lisa discusses some best practices she learned interacting with other patients, to help guide your healthcare interactions.
Holiday Travel + the Flu = I.V. Doctor
Colin shares his story about traveling over the holiday and catching the flu. Being in Hollywood he discovered a new service that kept him out of the hospital.
The (SP)ecial Battle
Colin shares his latest experiences with his specialty pharmacy getting caught in a lie, and his struggle to get anyone to care.
The Physician's Office
Lisa is entering a clinical study and runs across some opportunities to enhance customer service and the patient experience.
A Lesson in Advocating for Yourself
Colin shares an experience he had advocating for himself with his home infusion nurse.
A P.I. Patient Memorial
With Memorials surrounding us in D.C., Lisa thinks about what a memorial to the Primary Immunodeficiency community would look like for her.
Saying Uncle: Judy's Story
Guest writer Judy K. writes about when she had to make the tough decision to file for disabilty.
Oh No, the Immunologist just Called
Every year the Immunologist calls for Colin's checkup which always leads to more testing.
That Time I Lost My Job
Lisa talks about losing her job and what it felt like to think her Primary Immunodeficiency was the reason.