Blog
Measured Risk
Lisa shares an article she read that had her thinking about the measured risk the PI community has learned to take, but how others seem to struggle with it.
Primary Immunodeficiency and COVID-19 Vaccines
Joanna is a member of the primary immunodeficiency community and guest blogger for Immune Competence. Joanna shares some resources and conversations with others that she found comforting when trying to learn more about COVID-19 and the vaccines.
2020 - The Year of Vulnerability
Colin talks about what 2020 has meant to him so far and how he is trying to be more vulnerable to help himself do better and be better.
One Drug: Many Uses
Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.
20 Years Later - Thank You Plasma Donors
Colin reflects on hitting his 20 year anniversary since starting Ig therapy and talks about the importance of bringing awareness to plasma donation.
Sharing is Caring
Colin shares his insight in how he uses everyday experiences to share his story and help raise awareness for the PI community.
Clinical Trials
Ever wonder what happens in a clinical trial or how they work? Lisa shares her experience in being a part of three different clinical trials.
When YOU Are the Product
With all the information in the news on your data be used to target you, Lisa takes a look at what data you may be giving up in the most unsuspecting ways.
Be Your Own Advocate
Colin shares some thoughts about being your own advocate from a presentation he saw recently. Colin also challenges you to come up with your own advocacy goal for April - Primary Immunodeficiency Awareness Month!
Let's Talk Insurance
Lisa gives a refresher on insurance lingo and puts it all together to help you better understand different insurance scenarios that you may face when seeking care.
Let's Talk Lingo
Colin shares some of the important differences in terms and acronyms that may come up when you are talking to other people about your Primary Immunodeficiency, CVID, Ig Therapy, and plasma.
Patient 101 - A quick guide to improve healthcare interactions
Lisa discusses some best practices she learned interacting with other patients, to help guide your healthcare interactions.
Holiday Travel + the Flu = I.V. Doctor
Colin shares his story about traveling over the holiday and catching the flu. Being in Hollywood he discovered a new service that kept him out of the hospital.
The (SP)ecial Battle
Colin shares his latest experiences with his specialty pharmacy getting caught in a lie, and his struggle to get anyone to care.
The Physician's Office
Lisa is entering a clinical study and runs across some opportunities to enhance customer service and the patient experience.