Blog
2021 Was Hard
Colin shares how hard 2021 was for him and his family, but how he found compassion, acceptance, and gratitude in living with a primary immunodeficiency during a global pandemic.
Primary Immunodeficiency and COVID-19 Vaccines
Joanna is a member of the primary immunodeficiency community and guest blogger for Immune Competence. Joanna shares some resources and conversations with others that she found comforting when trying to learn more about COVID-19 and the vaccines.
On Losing Laura
A rare disease life is often filled with a difficult loss. For Lisa and Nancy, there will never be anyone like Laura. Learn more about why these friendships are worth having, even through loss.
2020 - The Year of Vulnerability
Colin talks about what 2020 has meant to him so far and how he is trying to be more vulnerable to help himself do better and be better.
Powered by Plasma
Colin shares a new national campaign from Immune Competence called Powered by Plasma. We are all linked together through plasma and we need more plasma donors.
One Drug: Many Uses
Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.
20 Years Later - Thank You Plasma Donors
Colin reflects on hitting his 20 year anniversary since starting Ig therapy and talks about the importance of bringing awareness to plasma donation.
Sharing is Caring
Colin shares his insight in how he uses everyday experiences to share his story and help raise awareness for the PI community.
My Word in 2019 - HEALING
Lisa checks-in with an update on why 2018 got hectic, and why her word for 2019 is HEALING!
Finding Balance
Colin shares some of the highlights from his year in 2018, how he found mindfulness through meditation, what he hopes to accomplish in 2019, and a personal thank you to the thousands of people who continue to read the blog.
Let's Talk Lingo
Colin shares some of the important differences in terms and acronyms that may come up when you are talking to other people about your Primary Immunodeficiency, CVID, Ig Therapy, and plasma.
Saying Uncle: Judy's Story
Guest writer Judy K. writes about when she had to make the tough decision to file for disabilty.
Patient Profile - Amanda Martin
Check out our interview with Primary Immunodeficiency patient Amanda.
Lisa's Diagnosis Story - Making My Own Way Out
Lisa shares her journey to a Primary Immunodeficiency Diagnosis.
Colin's Diagnosis Story - Life Defining Moments
Colin shares his journey to getting a Primary Immunodeficiency diagnosis.