Blog
Measured Risk
Lisa shares an article she read that had her thinking about the measured risk the PI community has learned to take, but how others seem to struggle with it.
Work In Progress
Nancy joins the Immune Competence blog with a look at what it has been like for her working from home and navigating the ever-looming return to the office while trying to determine what will be safe for her and preparing to advocate for herself as needed.
When Nothing Feels the Same
Lisa shares her feelings going into a strange end of the holiday season and the past times she has created boundaries to protect herself during the holidays.
Primary Immunodeficiency and COVID-19 Vaccines
Joanna is a member of the primary immunodeficiency community and guest blogger for Immune Competence. Joanna shares some resources and conversations with others that she found comforting when trying to learn more about COVID-19 and the vaccines.
2020 - The Year of Vulnerability
Colin talks about what 2020 has meant to him so far and how he is trying to be more vulnerable to help himself do better and be better.
Let's Talk Treatments
Lisa breaks down some of the treatment options for how to do your Ig therapy as well as options as to where you can do your Ig therapy.
One Drug: Many Uses
Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.
Infusion Cancelled - Shortage
Lisa takes a look at the problems behind the current infusion problems people are facing. She examines how supply works, where current problems could be, and what questions to ask if you hear the words “Your next infusion is cancelled.”
Stop Playing the Game
Lisa provides some practical advice for how to stop playing the game and being happy for other people. She talks about how her tips have helped her garner more empathy and support from those people around her.
Sharing is Caring
Colin shares his insight in how he uses everyday experiences to share his story and help raise awareness for the PI community.
When YOU Are the Product
With all the information in the news on your data be used to target you, Lisa takes a look at what data you may be giving up in the most unsuspecting ways.
Be Your Own Advocate
Colin shares some thoughts about being your own advocate from a presentation he saw recently. Colin also challenges you to come up with your own advocacy goal for April - Primary Immunodeficiency Awareness Month!
Let's Talk Lingo
Colin shares some of the important differences in terms and acronyms that may come up when you are talking to other people about your Primary Immunodeficiency, CVID, Ig Therapy, and plasma.
A P.I. Patient Memorial
With Memorials surrounding us in D.C., Lisa thinks about what a memorial to the Primary Immunodeficiency community would look like for her.
Alphabet Soup of Unpaid Leave
Know the protections for you at work! FMLA vs. ADA what is it, how are they different, and why you should care.