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Lisa talks out more ways that the Primary Immunodeficiency community can examine how to build guidelines for the long term to keep supply issues from happening.
Colin reflects on hitting his 20 year anniversary since starting Ig therapy and talks about the importance of bringing awareness to plasma donation.
Lisa takes a look at the problems behind the current infusion problems people are facing. She examines how supply works, where current problems could be, and what questions to ask if you hear the words “Your next infusion is cancelled.”
Lisa provides some practical advice for how to stop playing the game and being happy for other people. She talks about how her tips have helped her garner more empathy and support from those people around her.
Colin shares his insight in how he uses everyday experiences to share his story and help raise awareness for the PI community.
Lisa checks-in with an update on why 2018 got hectic, and why her word for 2019 is HEALING!
Colin shares some of the highlights from his year in 2018, how he found mindfulness through meditation, what he hopes to accomplish in 2019, and a personal thank you to the thousands of people who continue to read the blog.
Ever wonder what happens in a clinical trial or how they work? Lisa shares her experience in being a part of three different clinical trials.
With all the information in the news on your data be used to target you, Lisa takes a look at what data you may be giving up in the most unsuspecting ways.
Colin shares some thoughts about being your own advocate from a presentation he saw recently. Colin also challenges you to come up with your own advocacy goal for April - Primary Immunodeficiency Awareness Month!