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With all the information in the news on your data be used to target you, Lisa takes a look at what data you may be giving up in the most unsuspecting ways.
Colin shares some thoughts about being your own advocate from a presentation he saw recently. Colin also challenges you to come up with your own advocacy goal for April - Primary Immunodeficiency Awareness Month!
Lisa gives a refresher on insurance lingo and puts it all together to help you better understand different insurance scenarios that you may face when seeking care.
Colin shares some of the important differences in terms and acronyms that may come up when you are talking to other people about your Primary Immunodeficiency, CVID, Ig Therapy, and plasma.
Lisa discusses some best practices she learned interacting with other patients, to help guide your healthcare interactions.
Colin shares his story about traveling over the holiday and catching the flu. Being in Hollywood he discovered a new service that kept him out of the hospital.
Colin shares his latest experiences with his specialty pharmacy getting caught in a lie, and his struggle to get anyone to care.
Lisa is entering a clinical study and runs across some opportunities to enhance customer service and the patient experience.
Colin shares an experience he had advocating for himself with his home infusion nurse.
With Memorials surrounding us in D.C., Lisa thinks about what a memorial to the Primary Immunodeficiency community would look like for her.